Welcoming 2012 With A Look At The Past

Since launching this blog on January 1, 2010, I have written 184 posts. In an average month, between 2,000 to 3,000 readers check to see what I have posted. When a blog is especially controversial that number can jump to  6,000. Readers have posted 1,000 comments. Thank you for your interest.

I started this blog after several New York publishers rejected an idea for a book that I called HOPE.  I wanted to write about successful mental health treatment programs that were helping people recover. Unfortunately, the editors who heard my pitch were not interested in a book about success stories. I began this blog because I wanted to continue writing about issues, mostly mental health related, that are important to me, especially hope.  

The start of a New Year is a good time for reflection –  so I have reviewed my 184  posts and picked out a handful to highlight.  If you didn’t read them when they were originally posted, perhaps you will glance at them now. 

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Moving at “Glacier” Speed To Find New Drugs

The National Alliance on Mental Illness recently gave its 2011 Scientific Research Award to Dr. Jeffrey A. Lieberman who has a long and impressive resume in researching schizophrenia. Among his many titles, Dr. Lieberman is chairman of Psychiatry at the Columbia University College of Physicians and Surgeons, and is Director of the New York State Psychiatric Institute. 

Before he accepted his award, Dr. Lieberman gave an hour long lecture about his research. I want to share some key points with you that he made about current medications commonly prescribed for mental illnesses.

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Neglect and Abuse in North Carolina Prisons!

Levon Wilson,  a resident of Winston Salem, North Carolina, who had been diagnosed with bipolar disorder, was arrested on August 31, 2010, on misdemeanor charges and sent to the state’s Central Prison to await trial. Five weeks later, he was dead.

An autopsy showed that Wilson had been transferred from the prison to Wake Med Hospital in Raleigh with “moderately high levels” of lithium in his bloodstream ten days before he died. Lithium is often prescribed to treat manic symptoms common with bipolar disorder. But taking too much lithium is deadly. Patients taking lithium must be monitored with blood tests because too much lithium can impair the kidneys and obstruct bowels. 

The autopsy revealed that Wilson had died from “complications of lithium therapy,” which led to him suffering impaired kidneys and bowel problems. Despite the obvious — that someone in the prison system had screwed up in dispensing lithium — a state doctor ruled that Wilson’s death was the result of  “natural” causes. No one was reprimanded. No one was fired.

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Telling Our Stories

Since the publication of CRAZY, not a week goes by without me getting a letter or email from a distraught parent whose son or daughter has been arrested or is in jail because of a crime that was clearly tied to mental illness. The most common comment that I hear when I am on the road giving speeches about my book is: “You told my story.”

I always feel inadequate when I try to answer requests from other parents seeking help. I’m not a lawyer. I urge people to contact their local National Alliance on Mental Illness chapter or Mental Health America for guidance. I sometimes suggest  they contact the Bazelon Center for Mental Health Law. I ask if their local community has Crisis Intervention Trained police officers, a mental health court, or a jail diversion program.

And then I ask them to consider going public. I tell them newspaper and television reporters would be interested if they knew a person was put in jail because of a mental illness. Not everyone feels comfortable being interviewed. It also is never a good idea to expose someone you love to the media if he/she wants to keep their illness secret. Even though my son urged me to write my book, I spent many sleepless nights worrying that our openness about his arrest and illness would harm his future.

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Dr. E. Fuller Torrey: Sounding An Alarm or Being an Alarmist?

For the past several weeks, I have had an interesting and troubling email exchange with Dr. E. Fuller Torrey, perhaps the most controversial psychiatrist in America. He’s also one of the most influential.

Today, Dr. Torrey is best known for his campaign to get Assisted Outpatient Treatment laws passed. An example is Kendra’s law. There’s plenty on the Internet — pro and con — about AOT. 

It would be a mistake, however, to believe that Dr. Torrey’s impact has only been in promoting AOT legislation. He has been sounding alarm bells and criticizing our mental health system for decades.  Among other things, he has founded two organizations. The Stanley Medical Research Institute is a nonprofit organization that supports research looking for the causes and treatment of schizophrenia and bipolar disorder. According to its webpage, it has given away more than $300 million since 1989 for research, mostly outside the U.S. The second group is the Treatment Advocacy Center which describes it’s purpose as “eliminating barriers to the timely and effective treatment of severe mental illness.” TAC’s main focus is pushing for passage of AOT laws.

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Drop-In Center, Dancing Doc, Baton Rouge

If you are a regular reader of my blog, you know one of my favorite quotes is attributed to Margaret Meade who said:

Never doubt that a small group of thoughtful, committed people can change the world. Indeed, it is the only thing that  ever has.

One of my favorite things about traveling is getting to meet inspiring people who are changing their communities and improving the lives of persons with brain disorders.

Here are some examples.

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