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Capitol Hill Symposium Draws Advocates

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I took a day from writing yesterday to attend an all-day symposium in Washington D.C. that was entitled LOST: Dollars, People, Hope.  The keynote was given by Tipper Gore, a long time advocate. The thrust of her speech was that we needed to tie mental health to bigger issues that are important to all Americans if we want to stop Congress from cutting federal mental health funding.  Her first example was war.

Gore said that 18 veterans die each day by their own hands, an alarming statistic and an example of why we need a better mental health care system. If we just complain to politicians about mental health care cuts, she said, we probably will be met with deaf ears.  But if we explain that those cuts are going to penalize veterans who are suffering mental health problems because of their service to our country — then Congress will be more likely to authorize funding. 

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Telling Our Stories

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Since the publication of CRAZY, not a week goes by without me getting a letter or email from a distraught parent whose son or daughter has been arrested or is in jail because of a crime that was clearly tied to mental illness. The most common comment that I hear when I am on the road giving speeches about my book is: “You told my story.”

I always feel inadequate when I try to answer requests from other parents seeking help. I’m not a lawyer. I urge people to contact their local National Alliance on Mental Illness chapter or Mental Health America for guidance. I sometimes suggest  they contact the Bazelon Center for Mental Health Law. I ask if their local community has Crisis Intervention Trained police officers, a mental health court, or a jail diversion program.

And then I ask them to consider going public. I tell them newspaper and television reporters would be interested if they knew a person was put in jail because of a mental illness. Not everyone feels comfortable being interviewed. It also is never a good idea to expose someone you love to the media if he/she wants to keep their illness secret. Even though my son urged me to write my book, I spent many sleepless nights worrying that our openness about his arrest and illness would harm his future.

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Dr. E. Fuller Torrey: Sounding An Alarm or Being an Alarmist?

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For the past several weeks, I have had an interesting and troubling email exchange with Dr. E. Fuller Torrey, perhaps the most controversial psychiatrist in America. He’s also one of the most influential.

Today, Dr. Torrey is best known for his campaign to get Assisted Outpatient Treatment laws passed. An example is Kendra’s law. There’s plenty on the Internet — pro and con — about AOT. 

It would be a mistake, however, to believe that Dr. Torrey’s impact has only been in promoting AOT legislation. He has been sounding alarm bells and criticizing our mental health system for decades.  Among other things, he has founded two organizations. The Stanley Medical Research Institute is a nonprofit organization that supports research looking for the causes and treatment of schizophrenia and bipolar disorder. According to its webpage, it has given away more than $300 million since 1989 for research, mostly outside the U.S. The second group is the Treatment Advocacy Center which describes it’s purpose as “eliminating barriers to the timely and effective treatment of severe mental illness.” TAC’s main focus is pushing for passage of AOT laws.

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Helpful hints about what to do in a crisis, and a Post editorial

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Happy Fourth of July!

A new Psychiatric Crisis Resource Kit that can help families if someone they love develops a mental disorder is scheduled to be unveiled this week in Chicago at the national convention of the National Alliance on Mental Illness. It’s been developed by the Treatment Advocacy Center.    

Of course, the first thing that comes to mind whenever someone mentions TAC  is its aggressive and relentless campaign to promote Assisted Outpatient Treatment laws. But whether you support AOT laws or oppose them really doesn’t matter. All of us with loved ones who have a mental disorder need to be prepared and from what I have seen so far, TAC has done a real service by putting together a mental health first aid kit.

When my son first became ill, I was completely at a loss about what to do. And based on the emails and letters that I receive weekly, other parents, families and friends find themselves in the same situation.

For instance, the kit recommends that families compile a list of telephone numbers for key people, agencies and organizations that should be contacted if there is an emergency. While that sounds like a no-brainer, how many of us have the telephone number of a mobile crisis team, a psychiatric case manager, or an Assertive Community Treatment (PACT or ACT team) handy? Do you know the emergency numbers for your community mental health provider? How about your local suicide hotline? Do you know if your community has a Crisis Intervention Team and, if so, how to contact it. What’s the number of a public defender who knows mental health laws? Or a private attorney? Is there a mental health court in your jurisdiction and, if  there is, do you know what sort of cases it will hear?

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Stupidity Award for Promoting Prejudice

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I’ve decided to begin giving an award to persons or groups who show that they are prejudice against persons with mental illnesses. I’m calling it the Stupidity Award for Promoting Prejudice or the SAPP.  I’m sad to announce that the first recipient is Rick  Chandler a writer with NBC SPORTS. 

In a column published February 5th on Off the Bench, Chandler encouraged the Waunakee Wisconsin High School dance team to not change its “rather unique routine” when it competes in an upcoming state competition. Chandler writes:

 In it, the team “gets crazy” while wearing uniforms resembling straitjackets and restraints with the words “Psych Ward” on them. The girls, however, have been forced to tone down their routine after complaints from mental health advocates and parents that their act mocks the mentally ill. Political correctness gone mad? You be the judge….

Not that they should be apologizing in the first place. Exactly who is crazy here? If the girls feel in retrospect that their routine is insensitive and wrong, they should admit it and dump it. If they don’t feel that way, they should keep it unchanged and go full-speed ahead with the madness. Teaching our children to back down under pressure is not cool…Look, until we get a complaint from Giants’ reliever Brian Wilson, I say that his dance routine is good to go as is.    

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The Day Stigma Ends

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I’m always eager to testify or speak on Capitol Hill about the need for mental health care reform. Last week, Reps. Grace F. Napolitano (Ca-38 District) and Timothy F. Murphy (PA-18 District) invited five speakers to talk at a briefing sponsored by the Congressional Mental Health Caucus, which they co-chair.

Members of Congress don’t  show-up at briefings very often — at least the ones that I’ve participated in. When they do, they generally only stick around long enough to make a statement. After that, they move on to another event.  That’s fine because the most important faces at a congressional briefing are the legislative staff members. They’re the ones who actually draft legislation.Click to continue…