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Death of an Advocate: Glenn Koons

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Glenn Koons and Marlee Matlin

 

I first met Glenn Koons when I was invited to speak at a luncheon in Montgomery County, Pa., being hosted by the National Alliance on Mental Illness. It was one of the first speeches that I delivered after publication of my book and before my talk, NAMI Board Member Carol Caruso introduced me to Glenn. I was immediately struck by his easy-going manner. Carol bragged that Glenn was one of the first NAMI trained  Peer-to-Peer mentors in the entire nation. Glenn and I spoke for several minutes and I was impressed by his thoughtfulness and enthusiasm.

Our paths continued to cross during the coming years at various NAMI meetings and conventions. I was always happy to see Glenn and was thrilled when I learned that he had been one of only four NAMI peers who had been invited to the White House by President Obama to celebrate the 20th anniversary of the Americans with Disabilities Act of 1990.   Glenn wrote about the event for a NAMI blog.

A few weeks ago, I was asked by NAMI’s Darcy Taylor to write an article for NAMI’s VOICES publication. In my article, I mentioned three “consumers” who have inspired me. They are  Dr. Fred Frese, Diana Kern, and Glenn Koons. 

The day after I submitted my article, an email arrived telling me that Glenn was dead.

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No Laughing Matter

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 I believe all of us should do our best to fight  stigma. It might be as simple as not laughing when someone tells a joke that belittles a person with a mental disorder. Or it could be as bold as launching a boycott of a business whose commercials or product names are stigmatizing. 

This week, Karen Easter, in Knoxville, Tennessee, became appalled when she saw an offensive video clip that was posted on the website of  the Knoxville News Sentinel newspaper. The clip had been taken with a cell phone and it showed an adult man talking off his clothes and walking down the center of a busy shopping mall. The story that accompanied the clip reported that the man had removed his clothing because he believed there were “snakes in his pants and he had pain in his legs.” You could hear the person who took the video laughing at the sight and the website story immediately attracted a score of sarcastic comments along the ilk of  “spitting snakes” and other sexual innuendos.

The caption called the man a “streaker” but when you  read the story, it became clear that this young man had a mental problem. He was taken by the police to a local mental health center. 

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Mental Illness, Money, and Cheats

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If you read my book, CRAZY, you may remember Ted Jackson who lived in South Beach, had a mental illness, and was convinced that Jesus was returning to earth in 2007. Ted said God had ordered him to warn people about judgment day so he spray painted “Jesus 2007” graffiti  everywhere he could. He was caught several times and when he refused to stop, he was beaten by a police officer before being booked into the Miami Dade County Jail. That’s where I met him.
Ted received a small stipend each month from his family to pay his bills. He got his medication from the Veterans Administration, so even though the monthly cash payment was small, it was enough for him to live independently — until people started stealing from him.
And that sadly, that happened regularly in South Beach.

When do you go public?

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What I like most about writing a blog is that it provides all of us another venue for exchanging ideas.  So I am going to ask for your help and advice.
One of the many questions that Mike and I wrestle with is: When should a person with a mental illness reveal his disorder? 
Should he disclose it on a job application when he is seeking employment?
Should he bring it up during an interview for a job?
On a personal level, when Mike is dating, when should he — if ever — mention it?