What’s Your Advice?

I get emails every week from desperate parents seeking advice. Many have a son or daughter who’s been arrested. I remind them that I am not a lawyer, nor am I a social worker, psychologist or psychiatrist. I’m simply a father who became angry when my son got sick and I couldn’t get him meaningful help for his mental disorder.

The most common question that I am asked by other parents is:

  How did you get your son to take his medication?

The answer is: I didn’t.

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Death of an Advocate: Glenn Koons

Glenn Koons and Marlee Matlin

 

I first met Glenn Koons when I was invited to speak at a luncheon in Montgomery County, Pa., being hosted by the National Alliance on Mental Illness. It was one of the first speeches that I delivered after publication of my book and before my talk, NAMI Board Member Carol Caruso introduced me to Glenn. I was immediately struck by his easy-going manner. Carol bragged that Glenn was one of the first NAMI trained  Peer-to-Peer mentors in the entire nation. Glenn and I spoke for several minutes and I was impressed by his thoughtfulness and enthusiasm.

Our paths continued to cross during the coming years at various NAMI meetings and conventions. I was always happy to see Glenn and was thrilled when I learned that he had been one of only four NAMI peers who had been invited to the White House by President Obama to celebrate the 20th anniversary of the Americans with Disabilities Act of 1990.   Glenn wrote about the event for a NAMI blog.

A few weeks ago, I was asked by NAMI’s Darcy Taylor to write an article for NAMI’s VOICES publication. In my article, I mentioned three “consumers” who have inspired me. They are  Dr. Fred Frese, Diana Kern, and Glenn Koons. 

The day after I submitted my article, an email arrived telling me that Glenn was dead.

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Another Earley Advocates!

The featured speaker at the awards dinner at our local chapter of the National Alliance on Mental Illness was listed in the program under the name: EARLEY. But it was not me.

It was my son, the person whom many of you have come to know from my book:  Crazy: A Father’s Search Through America’s Mental Health Madness, by the name MIKE.  The NAMI meeting was the first time that he has ever spoken in public and he got a much  deserved standing ovation after he’d described his journey to recovery.

I am tremendously proud of him. Like so many others, our family has been through a roller coaster of events and emotions since 2001 when my son was first diagnosed with a severe mental illness. He’s been arrested and shot with a taser. There have been court hearings, four major breakdowns, repeated hospital stays, hours of therapy, angry words — so many angry words — even feelings of hopelessness and despair.

But for the past three years, he has been doing fantastic! He has been able to manage the symptoms of his illness. He is in RECOVERY and he is one of my heroes!

There are many reasons for his recovery, but he deserves the most credit. He has worked hard to get better. Fortunately, he had the expert guidance of a tremendous case manager. My son found a medication that helped him. And he had access to other crucial services that he needed!

I am blessed. I am telling you this to give you HOPE for your loved one. People do get better!  But why am I telling his story, when his own words can tell it better than me?

Here are excerpts from his speech. When you read them, you will understand why I am proud and fortunate to have such a wonderful son. I know many of you are struggling. Don’t give up. There were times when I didn’t think we would get where we are today.

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What Is Critical To Recovery?

What’s the most important ingredient to recovery if you have a mental illness?

I’m beginning my week by flying into LaCrosse, Wisconsin, where I will speak tonight at Viterbo University.  As always, I will talk about my book, my son, and what happened to our family. I will explain how those terrible events led me to the Miami Dade County Detention Center where I followed persons with mental disorders through the criminal justice system.  I will talk about how our jails and prisons have become our new asylums, why this is wrong and how we need to turn our current system back into a community health issue rather than having it continue to be a criminal justice problem. 

But on this trip, I’ve also been asked to speak in the afternoon to a number of local leaders as part of an informal afternoon “conversation.” The goal of this talk, which is sponsored by the Mental Health Coalition, is to discuss what is happening in La Crosse and what it might do better. 

My role is to describe successful programs that I’ve seen visiting 46 states and three countries — Iceland, Brazil and Portugal — and touring more than a hundred different programs.

I am always happy to talk about programs that are making a difference and I don’t mind citing specific examples.

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A Never Ending Debate

Mental Health America asked me to moderate a thought-provoking panel that featured four nationally-known activists during its annual convention in Washington D.C.

Kay Redfield Jamison doesn’t need an introduction.  Her memoir,  An Unquiet Mind, was the first book I read after my son, Mike, became ill, and it spent five months on the New York Times bestseller list.  She is not only brilliant and well-spoken, but also unassuming.

The other three panelists were new to me.

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NAMI Changed My Life

When I was a Washington Post reporter, I did not believe in joining groups or organizations. I needed to be independent in order to be objective. Then my son, Mike, got sick and the first thing I did after I finished writing my book, CRAZY: A Father’s Search Through America’s Mental Health Madness, was join the National Alliance on Mental Illness (NAMI.)

Why?

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