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Capitol Hill Symposium Draws Advocates

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I took a day from writing yesterday to attend an all-day symposium in Washington D.C. that was entitled LOST: Dollars, People, Hope.  The keynote was given by Tipper Gore, a long time advocate. The thrust of her speech was that we needed to tie mental health to bigger issues that are important to all Americans if we want to stop Congress from cutting federal mental health funding.  Her first example was war.

Gore said that 18 veterans die each day by their own hands, an alarming statistic and an example of why we need a better mental health care system. If we just complain to politicians about mental health care cuts, she said, we probably will be met with deaf ears.  But if we explain that those cuts are going to penalize veterans who are suffering mental health problems because of their service to our country — then Congress will be more likely to authorize funding. 

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Friends and Inspiration at NAMI Convention

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Rather than giving a traditional talk at the opening session of the National Alliance on Mental Illnesses’ national convention in Chicago last week, NAMI Executive Director Mike Fitzpatrick asked me to join him in a “conversation” about the state of mental health.   

I was worried because it was supposed to be for thirty-minutes. What could we possibly discuss during a half hour on stage that the more than 2,300 people in the audience would want to hear? Ironically, I only got to my fifth question when we ran out of time.

We began by talking about the shootings in Tuscon and Virginia Tech. How should NAMI members and advocates react when someone with an untreated mental illness causes such havoc? I immediately brought-up the ongoing criminalization of persons with mental disorders. Much of our discussion was about money, especially NAMI’s disturbing report, State  Mental Health Cuts: A National Crisis. Mike’s grim warnings about potential cuts to Medicaid and having the states take responsibility for federal funds allocated for persons with mental disorders were insightful and alarming.

Other topics included NAMI Standards of Excellence, welcoming diversity, making sure that consumers and parents had seats at the NAMI table, and the many positive changes that have come about because of NAMI. Mike rightfully bragged about Family to Family courses, In Our Own Voice, CIT training in juvenile facilities, and NAMI Walks which raise millions each year.

He ended by asking an important question: IF NOT NAMI — THEN WHO?  NAMI is the largest, grassroots mental health advocacy group in the U.S. Who will fight for those of us with mental disorders or family members with them?

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Apology from NPR’s CEO to NAMI

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Last Friday afternoon, Michael J. Fitzpatrick, the executive director of the National Alliance on Mental Illness, received a telephone call from Vivian Schiller, the CEO of National Public Radio, during which she apologized for a comment that she made during the firing of Juan Williams.  

Schiller made a flippant remark during the recent Williams’ controversy, saying that my former Washington Post colleague and friend, needed to consult “his psychiatrist.”

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NAMI Joins In Correcting NPR’s CEO

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Michael Fitzpatrick, the executive director of the National Alliance on Mental Illness, has joined me in complaining about an offensive remark that Vivian Schiller, the CEO and President of National Public Radio, said after firing Juan Williams. 
The day after I wrote on my blog about Schiller’s offensive comment, Mike fired off a letter to NPR and wrote a blog of his own posted on NAMI’s webpage chastising Schiller and asking NAMI members to write letters of complaint about her stigmatizing comment.

NAMI and Drug Makers’ $$$

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As a Washington Post reporter, I was trained to “follow the money” so last year when the New York Times published a story about how the National Alliance on Mental Illness had received $23 million from drug makers between 2006 to 2008, I winced. The driving force behind the story was Iowa Republican Senator Charles E. Grassley who was using his congressional powers to investigate the drug industry’s influence on the practice of medicine. 
NAMI’s critics were quick to attack, arguing that NAMI was in the pocket of pharmaceutical companies and that is why it endorsed the so-called “medical model,” which blames severe mental illnesses on chemical imbalances in the brain; backs Assisted Outpatient Treatment, which enables judges to forcibly medicate selective persons who have a history of violence or of not taking medications that help them; and believes that mental disorders can strike children as well as adults.
Obviously, all of us who support NAMI would prefer to have more of an arm’s length relationship with drug makers.
But I don’t believe for a second that drug makers control NAMI and, if I did, I would resign from it.

NAMI Changed My Life

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When I was a Washington Post reporter, I did not believe in joining groups or organizations. I needed to be independent in order to be objective. Then my son, Mike, got sick and the first thing I did after I finished writing my book, CRAZY: A Father’s Search Through America’s Mental Health Madness, was join the National Alliance on Mental Illness (NAMI.)

Why?

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