“The Odds Increase The Shooter Will Be My Brother And I Will Be One Of The Victims”

(12-22-17) Sandra Luckow is a documentary maker who teaches film production at Yale University School of Art, Columbia University and Barnard College. In April, I described her powerful film,  “That Way Madness Lies…” as one of the most honest and haunting documentaries about mental illness that I had watched.  It will be released officially in 2018. Meanwhile, you can read about it and watch its trailer here.

Who is to blame for the mass shootings? We are.

Guest Blog By Sandra Luckow 

On this fifth anniversary of the mass shooting in Sandy Hook, in light of all that has not changed as a result of that tragedy, I have made a decision.

If I ever find myself trapped by a gunman, I will let him shoot me.  I don’t want to survive.  I don’t think I’ll even make an attempt to do so.  I’ve spent too many years dodging bullets and crying for help. 

Why is this mass shooting, so remote from me, causing nightmares and snuffing out my hope?  It was, after all, just the first in an unprecedented onslaught of killings.  

In my mind, however, with each subsequent shooting, the odds increase that shooter will be my brother and I will be one of the victims. 

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Want to Insure Federal Agencies Prioritize Mental Illness Reforms? Call A Private Citizen To Testify

(12-18-17) Dr. Elinore McCance-Katz, the Assistant Secretary for Mental Health and Substance Abuse, did an excellent job testifying last week about a new law designed to improve our federal mental health care system.

But in the future, the Senate Health, Education, Labor and Pensions Committee  should also consider questioning one of the 14 non-federal members of the Interdepartmental Serious Mental Illness Coordinating Committee (ISMICC) when monitoring the effectiveness of federal programs.

Under the 21st Century Cures Act, Dr. McCance-Katz was put in charge of riding herd on the eight federal agencies that oversee more than an hundred mental health programs. To help her, Congress appointed a blue ribbon committee of federal and non-federal appointees. That means the 14 non-federal members, and I am one of them, on the ISMICC committee also need to be held accountable.

One of our tasks is praising agencies that are doing great work and taking others to task when it appears they are dragging their feet. For instance, the Department of Education didn’t bother to show up last week at the second ISMICC meeting.

That’s inexcusable given how important early intervention is in recovering from a mental disorder.

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NAMI Leader Keeps Focus On Serious Mental Illnesses and So Does Assistant Secretary

12-14-17) Mary Giliberti was on fire!

The Executive Director of the National Alliance on Mental Illness and I spoke at a press conference earlier today held in Washington to unveil a national plan to reform our federal mental health care system. (I’ll write more about the plan later.)

For those of you who don’t want to watch the entire news conference posted above, Mary’s remarks begin at the 30 minute mark and end at about minute 38, when I start my remarks. (I was asked, as always, to share my son’s story so it might be familiar territory to most of you.)

It was what happened afterwards that really had me cheering. Off camera, a discussion was taking place about how wide of a net the newly created Interdepartmental Serious Mental Illness Coordinating Committee should cast. There was talk about providing services for groups other than the seriously mentally ill. And it was Giliberti who immediately said, “No!”  The focus of the committee had to be on SMIs and serious emotional disturbances.

Lately, NAMI has been accused of not paying enough attention to SMIs.  Her firm reaction reminded me of a story that she told me months ago.

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Press Conference Tomorrow To Unveil Reforms To Federal Mental Health System: You Can Tune In

(12-13-17) I will be participating tomorrow (Thursday)  in a press conference being held at SAMHSA to unveil the Interdepartmental Serious Mental Illness Coordinating Committee’s  first report to Congress.

Who will speak:

·         Eric D. Hargan, Department of Health and Human Services (HHS) Acting Secretary

·         Dr. Elinore F. McCance-Katz, Assistant Secretary for Mental Health and Substance Use

·         Dr. Anita Everett, SAMHSA Chief Medical Officer

·         Mary Giliberti, ISMICC non-federal member

·         Pete Earley, ISMICC non-federal member

WHEN: Thursday, December 14, 2017 from 9 a.m. to 10 a.m. EST

WHERE:  Online via webcast. Visit www.samhsa.gov/ismicc on the day of the event for more information.

The ISMICC committee was created by the Helping Families in Mental Health Crisis Act that became law during the final days of the Obama administration after that legislation (pushed by former Rep. Tim Murphy R-Pa.) was incorporated into the 21st Century Cures Act. The new law also created the Assistant Secretary of Mental Health and Substance Abuse – a position held by Dr. Elinore F. McCance-Katz.

Congress created this new Assistant Secretary position and the ISMICC committee because it wanted to prioritize federal mental health reform. Because of time restraints related to federal clearance reviews, this report was written exclusively by the committee’s non-federal members. I am proud that these recommendations come from advocates who have worked tirelessly in the trenches and faced the real problems that I faced.

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How’s Your State Compare? Spending on Mental Health

(12-12-17) I’m in Richmond today participating in a meeting about mental health priorities for incoming Virginia Governor Ralph Northam. Meanwhile, I want to share a study being released today. 

New Study Reveals Shameful Eight-Fold Difference in Percentage of State Funds Allocated to Helping Mentally Ill. 

  • Maine, Pennsylvania and Arizona are the most generous states. 
  • Arkansas, West Virginia, Idaho, Kentucky, Oklahoma, Louisiana and Delaware are the stingiest states.  

Mental Illness Policy Org just released the first study to rank all fifty states based on the percentage of state-controlled funds that each state spends on mental illness. States that spend a higher percentage of their overall budget on mental illness are ranked as generous and those that spend a lower percentage of their overall budget on mental illness are ranked as stingy. Put another way, this report describes which states have been “naughty or nice” to the mentally ill.

Funds for Mental Illness found the most generous states in mental health spending are Maine, Pennsylvania and Arizona. The stingiest states are Arkansas, West Virginia, Idaho, Kentucky, Oklahoma, Louisiana and Delaware. The most generous states, Maine and Pennsylvania (5.6%), allocate eight times more as a percentage of total state spending than the stingiest state, Arkansas (.7%).

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The Doctor Is Out: Even If You Have Insurance, Finding A Psychiatrist Is Difficult

(12-8-17) Every time we take a step forward, it seems we get knocked two steps back.

Getting mental health treatment remains difficult in our country despite passage of The Paul Wellstone and Pete Domenici Mental Health Parity and Addictions Equity Act of 2008 (MHPAEA) that requires parity in health insurance coverage of mental health and physical health benefits.

That’s the findings of a survey the National Alliance on Mental Illness has released based on an online survey conducted in 2016 to examine what happened when individuals with insurance sought mental health care. The study, which drew responses from 3,177 individuals, is called The Doctor Is Out.

When trying to find a provider, respondents reported the most severe problems as follows: 1. Providers were not accepting new patients (55% psychiatrist, 45% therapist); or 2. Providers were not accepting their health plan (56% psychiatrist, 11% therapist).

An earlier study had found that only a little over half of all psychiatrists will accept insurance – compared to close to 90% of physicians in other medical specialties. It’s even worse if you depend on Medicare and Medicaid because psychiatrists accept patients at “significantly lower rates than other physicians do.”

That’s especially troubling when you consider that Medicaid is the biggest payer for mental health services.

Why is finding a psychiatrist who will accept insurance so difficult?

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