Pete Earley

(6-28-16) If you are one of the 71,000 readers who follow my author’s page and Facebook posts, you know that my main focus is on mental health reform, with an occasional blog (let’s be honest – sales pitch) about my newest book.

But today, I am posting a personal message: Happy Birthday to Patti, my wife and best friend.

We will celebrate our 18th anniversary later this year. I met her after her first husband, Steve, died much too young from cancer. My first marriage ended in divorce. Her loss of Steve and my divorce made both of us more appreciative of each other when we met and (I’m not kidding) fell instantly for each other. We realized how precious love is — and our’s has been a fairy tale (or Hallmark) romance ever since.

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(6-27-16) Let’s begin with news and then readers’ reactions.

1. Virginia State Police officials announced last week that they will investigate the horrific death of Jamycheal Mitchell , the 24 year-old inmate with schizophrenia who died in the Hampton Roads Regional Jail while waiting 101 days for an open bed in a state hospital. The investigation will be the first  by outside investigators into how a prisoner who was supposed to be under continual watch and daily care by a nurse suffered a heart attack brought on by starvation.

2. During a meeting last week, the Fairfax -Falls Church Community Services Board did not reverse its decision to defund the top peer job in the county.

3. The Boston Globe’s Spotlight investigative team, made famous for its Pulitzer Prize winning expose about sexual abuse inside the Catholic Church, launched the first in a series of stories  last week called the Desperate and the Dead about our broken mental health system. The first installment was about violence in families.

Reaction by Readers to recent blogs

Blogs that I posted about the tepid response of the disAbility Law Center in Virginia to Jamycheal Mitchell’s death and the need for peers in Fairfax sparked a flurry of email responses. Here are snippets worth reading.

Lots of Lawyers at disAbility. Millions of $$ But Little To Show For Virginians.

I have long wondered what the disAbility Law Center (DLCV), formerly VOPA, actually accomplished on behalf of the Commonwealth’s citizens with mental illness and developmental disabilities. Your blog posting this morning caused me to drill down to learn about the organization and what I found was not encouraging. Most surprising is the observation that the DLCV has a huge staff and a large budget, but few genuine accomplishments on behalf of mentally disabled Virginians.

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(6-22-16) I asked Mike Gaeta to share a blog with my readers that he had written about caring for his mother.) 

Benevolent Neglect: My Mom and Her Serious Mental Illness 

By Mike Gaeta

This week marks a month since my mom moved in with me. I knew it’d be challenging. In actuality, it has been damn near overwhelming.

On top of being her caretaker seven days a week, I also play the role of counselor, social worker, case manager, advocate and her main peer and family support person. Among other things, I’ve spent countless hours just trying to find a clinic or doctor for her (Many are not accepting new Medi-Cal patients, due to the increase in insured people from Obamacare.).

Interpersonally, challenges also abound. I’ve been trying to bond and build trust with my mom. That has been made exceedingly difficult, though, due to her delusions and hallucinations. These affect her moods, comprehension ability, level of social engagement and just her ability to have a conversation with me. In my estimation, she hears voices around 80% of the time.

As is common with people who hear voices, the voices can vary in the emotions and associations they arouse. Put simply, there are “good” voices and “bad voices.” For my mom, they take a religious form. There are “godly” voices and “evil” voices. The godly voices look out for her and protect her, she says. They can be biblical figures and/or prophets, while the evil voices can be evil spirits and/or witches. The evil voices torment my mom by telling her various things like they want to kill her, that she is getting ugly and old and even sexual things.

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Public fears of violence on the street by discharged (mental) patients who are strangers to them is misdirected. The people at the highest risk are family members and friends who are in their homes or in the patient’s home.

(6-23-16) In a study released this week, the Treatment Advocacy Center investigates a subject few like to discuss: family violence, specifically homicides committed by persons with mental illnesses. 

Because of stigma, we always begin every conversation about violence by explaining that individuals with mental illnesses are no more violent than the general public and, in fact, are more likely to become victims than perpetuators.

And that is exactly how the authors of RAISING CAIN: The Role of Serious Mental Illness In Homicide begin their 48 page study.

But they quickly explain their rational in writing about murders committed by persons with mental disorders:

It is…politically incorrect to study the relationship of family homicides to serious mental illness, especially in the United States, where the concept of “recovery” is the dominant theme in writing about individuals with mental illness. (But) …it is not discourse about family violence and homicides that is a major cause of stigma against all people with mental illness; rather, it is the family violence and homicides themselves. Until we confront the causes of family violence and homicides directly,  the stigmatization of persons with serious mental illness will continue to be an enormous problem. Yet, to ignore that a small percentage of persons with mental illness can be violent seems disingenuous.

This reasoning should not surprise anyone who is familiar with TAC, which is one of a few advocacy groups that speaks openly about violence. What did the authors of the report find:

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(6-24-16)  A local peer advocate asked if he could respond to a recent blog that I posted about our mental health board’s decision to defund the top peer job in our community. Yesterday afternoon, three Fairfax groups asked residents to sign a petition calling on the Community Services Board to restore funding for the Director of the Office of Consumer and Family Affairs. )

By Michael Pendrak

The Fairfax/Falls Church Community Services Board’s recent decision to save money by not filling the position of Director of Consumer and Family Affairs (DCFA) has devastated the peer/consumer community.  It has caused a chill in relations and mistrust between those who deliver and receive mental health services. Instead, of recognizing and appreciating the voices of peers/consumers, we feel the CSB board is practicing tokenism.

Eight years ago, Fairfax County undertook a detailed examination of its mental health services and issued a list of recommends in what is known as the Beeman Report. One of its highest priorities was to “Establish an Office of Consumer and Family Affairs with well-defined responsibilities and a leader who reports directly to the CSB Executive Director.”  (At the time, persons with mental health experience were more commonly known as consumers as in, ‘consumers of mental health services.’)

The Beeman Commission urged and the Board of County Supervisors agreed that there should be an office dedicated specifically and exclusively to representing the interests of consumers and their family members in Fairfax-Falls Church.  That office was to be free from interference from anyone below the level of the CSB Executive Director.  The Beeman Commission noted it was vital that there be peer leadership at the highest and all levels of the CSB.

At present, there are leaders among peers, but there are no peers among the leaders in the CSB.

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(6-20-16) Here’s a quiz.

Choose what you would expect an agency — created to protect persons living with disabilities — to do when a Virginian with schizophrenia gets arrested for taking $5 of snack foods without paying, is jailed for 101 days, and found dead in a feces covered cell from a heart attack caused by starvation?

(A.) Investigate the death and conditions in the jail to determine why that inmate lost 40 -50 pounds while supposedly being checked daily by a nurse.

(B.) Join the ACLU, Bazelon Center for Mental Health Law, NAACP, the National Alliance on Mental Illness, Virginia Chapter of Mental Health America, and the Washington Post in asking for a federal investigation.

(C.) Hold a press conference to denounce the death and file a lawsuit under the Civil Rights of Institutionalized Persons Act against the jail and state.

(D.) Write a letter of complaint to the governor.  

If you answered (D.), you have correctly answered what the Richmond-based disAbility Law Center of Virginia, an organization that contracts with the federal government to act as legal advocates for Virginians with disabilities, has done in the tragic case of Jamycheal Mitchell, the 24 year-old, African American inmate who was found dead last August in the Hampton Roads Regional Jail in Portsmouth.

A letter.

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