A Greasy News Clipping Touched His Life: Why We Need To Speak Out

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 From My Files Friday (4-15-16)

A reader wrote to me about her adult son, who had been diagnosed with bipolar disorder, but didn’t believe he was ill. I wrote her an encouraging note.  More than a year later, she sent me this note and gave me permission to share it with you.
 Dear Pete 
     I just want to tell you how, I believe, that you helped to get my son into treatment that he has steadfastly resisted for these many years. I think I told you of the difficult time I have had to get him to cooperate and to take his medicine correctly for his bi-polar. Even after he became diabetic, he was just as much in denial and un-cooperative.
      I was paying for his apartment and knew he was not taking care of himself. However, he would refuse all of my offers to help him wash his clothes, clean his apartment or any other assistance. His siblings were, also, turned down. He withdrew from all of us.    

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Patty Duke’s Kind Telephone Call When I Needed Reassurance and Hope – Plus I Visit Indiana State in Terre Haute

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(4-11-16) Shortly before the publication of my book, CRAZY: A Father’s Search Through America’s Mental Health Madness, my editor told me that he had mailed an advance copy to Patty Duke, who was living quietly in Coeur d’Alene, Idaho.

“But don’t get your hopes up,” he warned.

Every time a new book about mental illness was about to be published, editors would send her a copy and ask for a favorable comment to help sell the book. That had been happening ever since Duke published her best-selling book “A Brilliant Madness: Living with Manic Depressive Illness” in 1992, co-authored with Gloria Hochman.

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Long Awaited Report Blames System Rather Than Individuals In Starvation Death of Jamycheal Mitchell

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(4-6-16) A state agency in Virginia investigating the death of a 24 year-old prisoner with mental illness, whose feces covered body was discovered in his isolation cell August 19, 2015, reported yesterday that records kept by medical personnel who were responsible for watching him were “incomplete and inconsistent.”

But the long anticipated report does not assess blame on any individual. Rather it makes five recommendations about system changes that its authors claim could prevent future similar tragedies.

The 16-page report’s recommendations are bound to frustrate and disappoint the family of Jamycheal Mitchell who have asked for details that would explain what happened to Mitchell during the 101 days that he was languishing in jail waiting to be sent to Eastern State Hospital for a mental evaluation and competency restoration.

Mitchell died of “probable cardiac arrhythmia accompanying wasting syndrome of unknown etiology,” according to Donna Price, an administrator for the Medical Examiner’s Office in Norfolk. Wasting syndrome is defined as a profound loss of weight, greater than 10 percent of a person’s original body weight. Put simply, he had a heart attack caused by starvation.

The IG report stated that its investigators decided to not investigate who might have been responsible for Mitchell’s death. Nor did the IG investigate “every element of prior investigations.” (Jail officials already had conducted their own internal, confidential investigation and found themselves innocent of wrongdoing. State mental health officials released a report last month in which they acknowledged clerical errors were made.)

Instead, the IG said it focused on system errors rather than human ones. Just the same, the report contained several troubling revelations, most notably about the for-profit company NAPHCARE which was responsible for providing medical care to Mitchell in the jail but has since been replaced.Click to continue…

Head Jailer Says His People Are Not To Blame For Mentally Ill Prisoner Starving To Death

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(3-4-16) A physically healthy 24 year-old man is put in jail for taking $5 worth of snack food from a convenience store. Jailers know that he has a serious mental illness. Yet for 101 days, he never leaves his cell. He never showers. He often is covered with his own feces and urine is found on the floor of his isolation cell. His weight drops NOT 34 pounds, as has been previously reported, but 46 pounds, from 190 pounds to 144 pounds. An autopsy shows he suffered a heart attack brought on by him starving himself to death.

Yet, Lt. Col. Eugene Taylor III, assistant superintendent of Hampton Roads Regional Jail in Portsmouth, said last week that the jail had conducted a thorough investigation and found no evidence of any wrongdoing or mishandling of this prisoner’s case by his staff.

“To us, it’s an unbelievable tragedy, but it was not a circumstance where it could have been prevented by the Hampton Roads Regional Jail,” Taylor was quoted as saying by reporter Sarah Kleiner in a story published Friday by the Richmond Times-Dispatch.

Taylor said the jail would not make its internal investigation — that cleared itself — public, but he defended the jail’s treatment of Jamycheal Mitchell, whose body was found dead in his cell last August. Taylor told Kleiner that Mitchell was offered a shower every third day but never accepted it. He had a chance to spend an hour five days a week in the gym, playing basketball, running or interacting with other inmates but he opted to stay alone in the cell.

Taylor also revealed that Mitchell was held in a cell that was monitored by an officer every half hour and that medical personnel in the jail were required to check on him daily. In any given day, Mitchell was supposed to have been observed 49 times by correctional officers or nurses.

49 times.

But Taylor said no red flags were raised and no one on his staff realized that Mitchell was starving himself because food trays that were passed into the cell each day were returned empty. Taylor also questioned if Mitchell actually “starved to death” in jail.

“We have no indication that he lost so much weight that his heart stopped,” Taylor said. The jailer did not explain why he disagreed with a state medical examiner’s autopsy that found Mitchell died of “probable cardiac arrhythmia accompanying wasting syndrome of unknown etiology.” Wasting syndrome is when a person loses more than 10 percent of their weight in a short period from not eating. Taylor, who does not have a medical degree, said he didn’t believe that ruling.

At the risk of appearing cruel, I’d like to ask Taylor if he would have been satisfied with the explanation that he gave to the Richmond paper if Mitchell would have been his child. If his son had been held in a jail cell 101 days without ever taking a shower or coming out to exercise and had lost 46 pounds would he believe that his son’s death in jail “was not a circumstance where it could have been prevented”?

Now here is another sobering thought.

No one in the jail was disciplined. No one was fired. There were no reprimands put into anyone’s file and no policies have been changed. Meanwhile, Taylor remains in charge of 244 other inmates who have diagnosed mental illnesses.

If Taylor really believes that his employees aren’t culpable and there is no need for the jail to change any of its practices, then why will he not release the results of his internal investigation that cleared everyone?

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Two Powerful Films On World Bipolar Day From Two Very Different Perspectives

No Letting Go — a film by advocate Randi Silverman about what happens to a family when a child is diagnosed with bipolar disorder

(3-30-16) Today is World Bipolar Day  and I was happy to participate in a recent news conference at the U.S. Capitol held by the International Bipolar Foundation to call attention to the need for more research, understanding, and public education about bipolar disorder. In commemoration of today, two new films about bipolar disorder are being publicized: Touched with Fire and No Letting Go.

Filmmaker Paul Dalio showed the movie trailer at the press conference for his film TOUCHED WITH FIRE. It stars Katie Homes and Luke Kirby playing the roles of two poets, both of whom, have been diagnosed with bipolar disorder and feel more creative when they are manic and off their medications. Soon, both find themselves sinking in a world of delusions and self-destructive behavior. After a suicide attempt, Katie’s character realizes that she is ill and seeks help and stability, while Kirby’s character refuses to think that he is “defective” and struggles, arguing that his illness is a “gift” because he sees the world differently from others.

Dalio wrote, directed and scored the music for his film which is based on his life. He credits the nonfiction book, Touched With Fire by Dr. Kay Redfield Jamison with helping him see his mental illness through a more hopeful lens. Jamison plays herself in a cameo and explains in the film to actor Kriby — the poet who refuses to take his medication — how she eventually found a way to control her symptoms with medication without sacrificing her creativity or becoming flatlined emotionally. Dalio said Jamison’s book inspired him because it showed the link between creativity and bipolar disorder, which became a major theme in Dalio’s film.

In a Huffington Post blog, Dalio explained:

When out of all the poets who received the Pulitzer — the prize awarded to those who made the biggest contributions to the human spirit — 38 percent of them were bipolar, how can we simply label it a human disorder? Think how much more they could contribute to the human spirit if they knew it could be used as a gift to humanity, instead of something to hide from humanity?

 

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Laura Remembers Zac: The Son She Wished You Knew

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(3-29-16) (This is the first of several personal stories which I plan to post periodically in memory of a loved one with mental illness. Lest they be forgotten.)

The Son I Wish You Knew

By Laura Pogliano

My son Zac was 16 when he had his first psychotic episode. Seven years later, he died of heart failure in his apartment. Of all the hellish components of my child’s life with schizophrenia, perhaps the most heart wrenching for me was that no doctors or caregivers ever knew my child before he became sick. They came to know him after he was drastically changed by illness, paranoia and the effects of medication.

Early on in his illness, when I begged doctors to save my child, I was speaking of his personhood, those intangibles that made Zac my son. His dry humor. His patience and compassion. His musical talents. His ‘old soul.’

When I first learned of his diagnosis, the specter of my son becoming a lifeless, chronic schizophrenic patient haunted me. Reconciling the loss of a child is incomprehensible; reconciling the loss of a child who is still living defies description. This unique kind of sorrow may be unintentionally compounded in mental illnesses by the very people who fight alongside you, knowing very little about the person they’re saving, or what he’s lost, despite endless conversations about how he compares to his baseline self.

At Zac’s wake, for the first time in seven years of his illness, I suddenly began remembering my own son. Looking through hundreds of photos for the wake, I kept seeing his broad smile and thinking, Wow! He was so handsome, and so happy. His life became so consumed with medical care, so overwhelmingly a sick life, I’d forgotten the son I knew. That’s the son I want to write about. That’s the son I wish you knew.

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