Cooperation and Communication Often Are Missing In Mental Health!

 

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1-8-2015  From My Files Friday:  More than four years ago, I wrote about how a lack of communication frequently prevents persons with mental disorders from getting meaningful help. Unfortunately, this continues to be a major problem in many communities. In a recent conversation, Judge Steven Leifman, who is featured in my book, CRAZY: A Father’s Search Through America’s Mental Health Madness, told me there are more than four dozen different mental health providers in Miami/Dade County and everyone one of them has a different way of handling patients. There is no sharing of information so a client may be diagnosed by one provider and given a prescription and then go across town to another, get a different diagnosis and a different prescription.

In this earlier blog post, I describe how Judge Leifman has been trying to bring order out of chaos.

WE NEED TO BEGIN TALKING TO EACH OTHER IF WE WANT TO FIX OUR SYSTEM  (First published 7-26-10)

During my travels, I’ve visited many communities where there is little or no communication. The police don’t talk to local providers who take care of persons with mental disorders and substance abuse issues. These providers don’t talk to each other. Because of HIPAA, no one wants to talk to parents. Oftentimes, patients and their advocates are not properly informed or asked their opinions.

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First Look at RESILIENCE — Jessie Close’s Memoir About Mental Illness, Addictions & Recovery

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RESILIENCE: Two Sisters and A Story of Mental Illness, the memoir which I helped Jessie Close write, will officially go on sale January 13rd, but can now be found in many bookstores and, of course, can be ordered online.

I suggested that Jessie write a memoir after hearing her speak in 2012 at a National Alliance on Mental Illness event about her recovery from mental illness and co-occurring drug and alcohol addictions. I was deeply moved by her story and by how her family, especially her famous sister, the actress Glenn Close, supported her through a series of crises. It was Jessie who first asked Glenn to help fight stigma, a request that sparked the creation of  the advocacy group, BringChange2Mind.

Our literary agent, David Vigliano, notified publishers and we were fortunate enough to secure Deb Futter, a Vice President and Editor and Chief of Hardcovers at Grand Central Publishing, as the book’s editor.

I believe Jessie’s brutal honesty and RESILIENCE will inspire and help others.  I hope after reading the PROLOGUE, you will want to continue reading her amazing story.

RESILIENCE: Two Sisters and A Story of Mental Illness

By Jessie Close with Pete Earley

“She is not an ordinary or ‘run-of-the-mill” human being…” from an analysis of my handwriting when I was seventeen.

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The More Sensitive, the More Susceptible: A Son’s Words

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As we celebrate the holidays and coming new year, I am drawn to what Sander Pick, the son of Jessie Close, said during a speech a few years ago.

“I’ve always thought that the more sensitive a person is, the more susceptible they are to mental illnesses. A sick joke in our universe is that the more it allows a person to see its beauty and deep connectivity, the more difficult it becomes for that person to maintain good mental health.

     “In our culture, we tend to treat this tradeoff with a fierce double standard. As long as they are sharing with us beautiful insights into humanity, we will love and cherish them as heroes, but if they fall into substance abuse, depression or any other form of mental illness, we tend to say, ‘It’s not our problem.’

     “Classically, these are artists, musicians, writers, etc., but, of course, they come in all sorts, unsung or not. These people tend to add value and meaning to our lives. At their best, they are the types who make us laugh and cry, to learn and to take risks and to love. They are brave and it angers me that as a society, we abandon them when their skies darken.”

Merry Christmas and Happy New Year!

Rep. Tim Murphy, Sen. Creigh Deeds, Philanthropist Ted Stanley: Impact Players in Mental Health 2014

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Pennsylvania Congressman Tim Murphy gets my nod as the Impact Person of 2014 in Mental Health.

Whether you agree or disagree with the Republican from Pittsburgh, his relentless attempt to radically change how the federal government oversees the delivery of mental health services has focused a national spotlight on our current broken system.

Murphy launched his crusade two years ago after he met with the parents of children murdered at Sandy Hook Elementary school by Adam Lanza, who had a mental disorder. He recently told a reporter from CNN that he keeps photographs of those children in his Capitol Hill office as a reminder of his pledge to their parents that he would introduce wide sweeping changes.

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My Mom Ate Burnt Toast

FROM MY FILES FRIDAY: On December 19th, one year ago, my mother, Jean Earley, died from cancer.  This is the eulogy that I gave at her funeral.

My Mother

There are four things that you need to know if you want to know about my mother, Jean Earley.  She loved her God, she loved her husband, she loved her children — and she ate burnt toast.

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Let’s start with God.

My father didn’t start his career as a preacher. He owned a mom and pop grocery store in Douglas, Arizona, but he felt unfulfilled. He believed that God was calling him so he sold the store and studied to become a minister. His first church was in Buffalo, a town in the Oklahoma panhandle.  My father soon fell into a pattern. He would move to a small Disciples of Christ church that was struggling to attract members and build up that congregation through his preaching and his financial expertise until it was on firm footing and thriving. And then he would feel compelled to find yet another troubled church to rescue.

My mother was his defacto co-minister. She used her artistic skills to do chalk drawings during his sermons on Sunday nights to illustrate his lectures. She taught Sunday school, sang in church choirs, organized ladies groups, helped at church dinners and truly lived her beliefs.

Here’s an example.

Many of you know that my mother was completely blind in one eye and had macular degeneration in the other. What you don’t know is that she was blinded when an incompetent eye doctor severed her optic nerve during a bungled cataract surgery in South Dakota. There was never any talk of suing him, no anger at him by my parents. My mother simply accepted her blindness as a challenge that God had given her. She didn’t understand it, but believed it would not have happened if God had not wanted her to experience and grow from her loss of sight.

Example two:

My sister, Alice, died at age 17 when the motor scooter that she was riding – my motor scooter — got struck by a car in an  intersection. I was fifteen.   In the town of 1,000 residents where we lived during the 1960s, it was the custom that families in mourning stayed behind a veiled curtain in our church during a funeral.  My parents, along with my brother and me, sat in the front row directly in front of my sister’s coffin and greeted people as they went by it. My parents wanted to show that they believed that death could not defeat Christians who believed in the resurrection of Christ.  While profoundly devastated by their loss, they believed my sister had gone to a better place. My mother was certain of it.

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Best & Worst in Mental Illness During 2014

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THE BEST: TRUDY HARSH and The Brain Foundation

After her daughter, Laura, developed a brain tumor at age eight, Trudy Harsh became a fearless advocate for persons with brain disorders. Tired of bureaucratic ineptness, she decided to do something about Fairfax County’s deplorable lack of affordable housing. (Some persons with mental illnesses could wait up to 18 years for an apartment.)

Trudy used her professional skills in 2003 as a real estate agent to launch an all-volunteer group called “The Brain Foundation.” With $50,000 in seed money from local entrepreneur, Wilbur Dove, Trudy secured a $450,000 loan from the Virginia Housing Development Authority – enough to buy a four-bedroom townhouse. She arranged for Pathways Homes to provide residential services for the house’s four residents. Trudy named the facility “Laura’s House” in honor of her daughter who passed away in 2006 at age 38.

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