(3-4-16) Last year, I posted a blog about “Jenny,” a fifteen-year-old girl diagnosed with Anorexia Nervosa whose parents were waging a social media campaign to persuade Aetna Insurance to pay for her treatment in a residential center that was out-of-network. Jenny had already gone through in-network treatment programs four times during a two year period without success. Twelve hours after that blog was posted, Aetna agreed to approve coverage of Jenny’s treatment at Oliver-Pyatt Center, a facility in South Miami that specializes in treatment eating disorders. Sadly, I received this email from Jenny’s parents this week.)
Dear Pete,
After your blog last year and 34,000 tweets, Aetna agreed to cover our daughter’s treatment at Oliver–Pyatt. I never thought I would have to write for help again, but here it goes. In January, my husband’s insurance changed to Blue Shield of California. We had no choice but to switch, but we thought we were in the clear because Oliver–Pyatt is in their network. Just to make sure there were no bumps, we chose the most comprehensive Blue Shield plan available to us.
Obviously, we didn’t want any interruption, because for the first time since the summer of 2014 Jenny has been making real progress. She is even now verbalizing that she wants to recover! Before Oliver-Pyatt, she was “white knuckling” it — eating and going through the motions to appease her family and treatment team — her illness quietly waiting for the next opportunity to restrict, over-exercise, or self-harm herself.
At Oliver-Pyatt, doctors have worked to normalize the eating experience for her, as opposed to re-enforcing it as purely a mechanism for weight gain. Thanks to that approach, she has on occasion said that she actually enjoys the flavor of some foods! Eating is still very much a struggle, but she’s learning to discern likes and dislikes based on taste as opposed to caloric or fat content.