One Step Forward, 2 Back: Family Again Fighting Insurance Giant For Daughter’s Health Care

anorexia

(3-4-16) Last year, I posted a blog about “Jenny,” a fifteen-year-old girl diagnosed with Anorexia Nervosa whose parents were waging a social media campaign to persuade Aetna Insurance to pay for her treatment in a residential center that was out-of-network.  Jenny had already gone through in-network treatment programs four times during a two year period without success. Twelve hours after that blog was posted, Aetna agreed to approve coverage of Jenny’s treatment at Oliver-Pyatt Center, a facility in South Miami that specializes in treatment eating disorders. Sadly, I received this email from Jenny’s parents this week.)

Dear Pete,

After your blog last year and 34,000 tweets, Aetna agreed to cover our daughter’s treatment at OliverPyatt. I never thought I would have to write for help again, but here it goes.  In January, my husband’s insurance changed to Blue Shield of California.  We had no choice but to switch, but we thought we were in the clear because OliverPyatt is in their network. Just to make sure there were no bumps, we chose the most comprehensive Blue Shield plan available to usblue_shield

Obviously, we didn’t want any interruption, because for the first time since the summer of 2014 Jenny has been making real progress. She is even now verbalizing that she wants to recover!  Before Oliver-Pyatt, she was “white knuckling” it — eating and going through the motions to appease her family and treatment team — her illness quietly waiting for the next opportunity to restrict, over-exercise, or self-harm herself.

At Oliver-Pyatt, doctors have worked to normalize the eating experience for her, as opposed to re-enforcing it as purely a mechanism for weight gain.  Thanks to that approach, she has on occasion said that she actually enjoys the flavor of some foods!  Eating is still very much a struggle, but she’s learning to discern likes and dislikes based on taste as opposed to caloric or fat content.

Click to continue…

“We Should Be Embarrassed About What We Are Doing!”

How America’s criminal justice system became the country’s mental health system

 Kevin Earley of Fairfax County, Virginia, knows too well what it’s like to be on the bad side of a police officer as a person with bipolar disorder — scared you’re about to die.
Prior to the encounter, Kevin’s father, Pete, called police when Kevin, now 36, acted violently on a night in 2005. Kevin refused to surrender and tried to flee, thinking police were trying to hurt him. Officers blasted him twice with a Taser, shocking him with 50,000 volts of electricity each time.

“I was very delusional, erratic, confrontational, and paranoid,” Kevin said. “So when they came, they tased me.”

Click to continue…

My New Speech: What I’ve Learned As A Parent And Why Engagement Is The Key To Recovery

speaking

(2-29-16) What’s the key to helping someone with a mental illness recover?

Is it robust community mental health services? Is it by forcing someone to take anti-psychotic medication? Is it housing? Jobs?

I’ve spent the past ten years traveling our country touring programs, examining services and talking to mental health experts, other parents, family members, and persons who have recovered. And I’ve come to believe that everything we do to help people recover is a temporary band-aid if the individual who is sick doesn’t want to get involved in their own recovery.

Lessons I’ve Learned: The Key To Recovery Is Engagement is the title of a new speech that I will be delivering to audiences beginning this year. (Here is a five minute snippet of my speech.)

 

This doesn’t mean that I’m no longer going to speak about the inappropriate incarceration of persons with mental illnesses in our jails and prisons. I still plan to talk about the need for Crisis Intervention Team training, jail diversion, mental health courts, and re-entry programs. I’m still going to speak about my book, CRAZY: A Father’s Search Through America’s Mental Health Madness, and how my son’s breakdown and arrest led to me spending ten months inside the Miami Dade County jail following persons with mental illness through the criminal justice system and back onto the streets.

Click to continue…

3 Noteworthy Events, Including Documentary That Chronicles Unnecessary Death of Linda Bishop

GOD KNOWS WHERE I AM (Trailer) from Brian Ariotti on Vimeo.

(2-26-16) I am delighted that filmmaker Brian Ariotti has made a documentary about the life and death of Linda Bishop. The film, which was shown this week at the Big Sky Documentary Film Festival, raises important questions about how we treat persons with serious mental illnesses.

I first heard about Linda Bishop’s death in late 2009 when I met her sister, Joan Bishop, after giving a speech in New Hampshire. I was horrified when Joan told me how her sister had died after being discharged by the New Hampshire State Hospital with no real follow up care. Shortly after meeting Joan, I published two blogs exposing the tragedy in February 2010. (see Linda’s Story Part One and Part Two.)

Within hours after Linda was discharged, she broke into an abandoned farmhouse where she survived on apples while waiting for divine guidance. Alone, psychotic and slowing starving herself to death, Linda kept a diary up to within a few weeks before her death.

Oct. 8
So this is my 5th day of freedom – basic synopsis – left NHH at 11 am…then into woods…So here I sit for the second day, have water and apples awaiting further instructions. Can’t walk too far on just apples. Don’t really want to talk to anyone and even attempt to explain the situation… Crying now. Just disappointed again. Don’t see how I can live on apples until Advent.

..Dec. 18th.
This is my 13th day without food. Fell yesterday when coming in from getting snow for water, hurt left knee, shoulder and cheekbone, writing this lying down – only time I feel good is when I am sleeping because then I forget.

It was estimated that she died sometime in January 2008 but her body wasn’t found until May. She had been diagnosed with bipolar disorder.

Click to continue…

Treatment Rather Than Punishment In Horrific Case, But What Can We Do In The Future

motherswing

(2-22-16) Maryland Judge Hayward West should be congratulated on his decision to place Romechia Simms, the Maryland mother found pushing her dead child on a swing last year, in treatment for her schizophrenia rather than sending her to jail.

Simms had stopped taking her medication when she became psychotic, began hearing voices, and took Ji’Aire Lee to a park where she pushed him in a bucket swing for more than 40 hours, including in the rain. The 3 year-old died of hypothermia and dehydration.

Public defender Elizabeth Connell said the agreement to keep Simms in community treatment represented a “progressive way of thinking” and was a “testament to the progress of science and society.” I agree.

Charles County State’s Attorney Tony Covington wasn’t pleased, but said he didn’t have much choice  after three psychologists found Simms not criminally responsible for her actions.

Click to continue…

Sen. Grassley: “How Do We Keep Mentally Ill Individuals From Harming Others?”

Grassley

Dear Mr. Earley,

Thank you for your testimony at the Senate Committee on the Judiciary hearing entitled: “Breaking the Cycle: Mental Health and the Justice System”… Attached are additional written follow up questions from Committee members…”

From Chairman Chuck Grassley:

I believe it is uncontested that mental health and mental illness have played at least some, if not the primary role in incidents that are now known by chilling, geographic, monikers such as Virginia Tech, New Town, Aurora, and Roanoke. As the Wall Street Journal reported late last fall, we need to make sure we are getting to these individuals when they are struggling with mental health issues, but before they spiral into full blown crisis.

Given that there are multiple schools of thought on how best to handle the mental health crisis as it relates to mass murders, what do you believe would be the most effective way to keep mentally ill individuals from harming others? Put another way, what can we do to help these ill individuals, but also prevent yet another mass murder?

RESPONSE FOR THE RECORD FROM PETE EARLEY, AUTHOR, JOURNALIST

As the parent of an adult son with a severe mental illness, I cringe whenever I see a news report about someone who is psychotic committing a violent act, such as a mass shooting.

It is important to put these shootings into context.

*Overall, persons with mental illnesses commit only five percent of all crimes. (1.)

*Overall, persons with mental illnesses are more likely to be victims than perpetrators of violence. (2.)

*When it comes to mass shootings, a study found that only 11 percent of mass shootings between 2009 and 2015 involved gunmen suspected of having mental health problems. (3.)

Click to continue…