Listening to a Peer

     When my sister-in-law Joanne was diagnosed with cancer, my wife, Patti, immediately began searching the Internet for information and one of the most useful websites that she found was a blog being written by a woman undergoing cancer treatment. Patti became a faithful reader and found this woman’s writings helpful and inspiring. Up until Joanne’s death last year, Patti felt that she, Joanne, and the blogger were in the same foxhole. 

     No one thinks it’s odd to ask for direction from someone who has gone through a life-altering illness  — except when it comes to mental disorders. Too often, persons with mental illnesses are ignored even after they have recovered from all symptoms of their illnesses. Part of the reason for this is stigma and the deeply held belief that persons who are “mentally ill” can’t be trusted to take charge of their own lives.  

 Let me be clear here because this is an emotional subject, especially among parents, of which, I am one. When Mike became psychotic, I did not listen to his ranting. I stepped-in and did what I believed any decent human being would do when someone they love becomes so obviously mentally unstable that they need an intervention.

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Another Example of The Power of One

 If you are a regular reader of this blog or you know me personally, you realize that I believe one person can make a significant difference in our society and that all of us are obligated, in our own ways, to do something for the betterment of us all. This is one reason why I became a journalist and author. 
There is no better example of how much an individual can change our nation than Bryan Stevenson, the founder and executive director of the Equal Justice Initiative, and the Harvard-educated lawyer who is the real-life hero of my fourth nonfiction book, Circumstantial Evidence: Death, Life, and Justice In a Southern Town.
Last week, the U.S. Supreme Court issued a historic ruling in (Graham v. Florida) that Bryan was instrumental in arguing. More on that later, but first, some background.

Common Sense, Huge Impact

One of the lessons  that I’ve learned visiting mental health programs in 46 states during the past four years is how often a small, common sense change in policy can have a huge impact on helping persons who are ill. 

I saw an example of this when I toured the Los Angeles City Jail, which many of you know has become the largest de facto public mental heath facility in our nation with an average population of 1,400 prisoners with mental disorders.

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A Mother Who Lost Her Daughter But Is Saving Others One House At A Time

Today is Mother’s Day and I would like to tell you about an extraordinary mother who also is an amazing mental health advocate. Her name is Trudy Harsh and she lives in Fairfax, Virginia.

Trudy’s daughter, Laura, developed a brain tumor when she was eight years old. Doctors at Georgetown Hospital in Washington D.C. were able to remove it, but they warned Trudy that Laura would only live for six more years at best. 

As often happens to persons who undergo traumatic brain injuries or have parts of their brain removed, Laura awoke from her surgery a completely different person. She was not the bright, sensitive and loving child that Trudy had given birth to. The parts of her brain that controlled her emotions, especially anger, had been destroyed.

Crisis Care Centers vs ERs

The first time Mike became psychotic, I drove him to a hospital emergency room. We didn’t know any psychiatrists and Mike needed immediate help. Taking him there turned out to be a mistake.

Emergency rooms are where everyone goes nowadays whenever they have any kind of health-related crisis, but many are poorly equipped to deal with psychiatric patients in the midst of  a mental break.  

Some patients are turned away, as Mike and I were, without getting help. Or a patient might be held down and given a shot of Haldol or another strong anti-psychotic  that will help stabilize him but also can turn him into a walking zombie for days.

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Psychiatric Advance Directives Make Sense!

If you have read my book, this blog, or heard me speak, then you know that the first time my son, Mike, became psychotic, I raced him to a hospital emergency room seeking help. Mike was delusional, but he didn’t believe anything was wrong with him, and he was convinced that all “pills were poison” so he refused treatment. The emergency room doctor told me that he could not intervene until Mike became an “imminent danger” either to himself or others. That was the law. Mike had a right to be “crazy.”  Forty-eight hours later, Mike was arrested after he broke into an unoccupied house to take a bubble bath.
The second time Mike became psychotic, I waited until he became dangerous and what happened?
Our local mobile crisis team refused to come help me, the police were called, and Mike was shot with a Taser.
As a father, those two situations frustrated and enraged me.
What I didn’t know at the time was there was an alternative that could have helped Mike and possibly  prevented what had happened to us. 
It’s called a Psychiatric Advance Directive and this week, I received a wonderful email from my state National Alliance on Mental Illness chapter telling me about how PADs, as they are known, are becoming more common in my home state of Virginia.
A PAD is a legal document that is filled-out by a person with a mental illness while he/she is  well. (One of the biggest myths about persons with mental disorders is that they are always psychotic and, therefore, incapable of rational thought.)
PADs are generally divided into two sections.