(9-20-21) Today I welcome a guest blog by Glenn Slaby, who describes in this powerful essay, his life living with a serious mental illness. As always, the views expressed are solely those of the writer.

CROOKED ROADS : Part One

By Glenn Slaby

Sometimes, I just can’t believe I have mental illnesses. Four, the latest count. Some genetic, some from life. I accept, not as a degradation, but a cross. Our culture sometimes does not accept this type of cross. My mind is so different in the way I think, perceive, feel and act, like in a box. This is my life, making it purpose from a burden, a trial to be borne to help others. I am different and wonder, should I care if my inflictions are visible.

Thirty-five years mind different. Then, twelve years misdiagnosed. Twenty learning, struggling, developing into something new. How many acts, decisions made within this frame? How many the right choices? What of the long-term effects of being misdiagnosed for so long? The difficulty of being a husband, father when the brain doesn’t work when it should.  Why?  I’m still one of the lucky ones. 

I hope, believe, “I consider that the sufferings of this present time are as noting compared with the glory to be revealed for us.” Romans 8, 18*

“Sorry there is nothing we can do for you.” The doctor and therapist, their words seemed so easily spoken. Did they understand the pain inflicted with those words?  And a knife went through my heart, my wife’s.

We stared, dumbstruck. Third in-patient stay in as many months. Unbeknownst, two more to come. Seems a long time ago, yet freshly lies on the surface of mind’s memory, Scars mostly healed – the discernible ones.  Diagnosis, treatment, how different today than in ’04, hopefully. Twelve years prior, the year of my son’s birth, some attributes led to the incorrect bi-polar disorder conclusion. I wonder, ask why?

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(9-16-21) Andrew Sperling, the National Alliance on Mental Illnesses‘ long-time director of Legislative and Policy Advocacy, has resigned and accepted a new lobbyist job with Intra-Cellular Therapies, a biopharmaceutical company founded in 2002.

Sperling has been NAMI’s Capitol Hill advocate for 25 years and is well-known and respected in congressional circles. During his tenure overseeing NAMI’s federal policy agenda in Congress and before federal agencies, he worked on passage of the historical Paul Wellstone and Pete Domenici Mental Health Parity and Addiction Equity Act of 2008, and played a key role in getting Congress to approve the Frank Melville  Supportive Housing Investment Act. Those two major laws helped individuals with mental illnesses receive equable insurance treatment and assisted housing.

“I love NAMI and leaving was not an easy decision, but this was a once in a lifetime opportunity for me to join an exciting company that is focused almost entirely on developing novel medications designed to help people with mental illnesses,” Sperling told me. Click to continue…

(9-14-21) In 1957, a fourteen year old boy named Mike Trimble was committed to the Colorado State Hospital in Pueblo after sequential diagnoses of “retardation, schizophrenia and epilepsy.” Mike’s brother, Stephen, was only four years old. Ten years later, Mike was mainstreamed back to Denver but didn’t want anything to do with his family.

In a new nonfiction book, The Mike File: A Story of Grief and Hope, younger brother Stephen, searches for answers about what happened to his older brother.

My interest in Stephen Trimble’s book was piqued, in part, because as a teenager I spent a week at the Pueblo asylum. It was during the summer of 1969 and I was a  volunteer there through my church. I mowed lawns and cut hedges in the morning and in the afternoon tagged along with a psychiatrist on his daily rounds. This was years before HIPAA and no one hesitated at having a naive teenager roaming the wards asking questions.

The hospital was in the midst of sending patients home as part of the coming national deinstitutionalization movement. In 1961, the hospital had hit a high of 6,100 patients. I spent my week observing two patients. The first was a woman who had been committed at her husband’s request. She had fought with him and seduced their teenage son to punish his father. The second patient was a young man – Chris – who’d been dropped off at the hospital as a toddler and grown up inside the asylum. By the time of my visit, doctors were convinced that the then forty-year old had never had a mental disorder. He’d been an unwanted child who was simply dumped at the doorstep. He had symptoms of Tardive dyskinesia even though records showed that he had not been heavily medicated and he acted as if he were sick because other patients had served as his role model. It was a horrific situation, which only became sadder when he was discharged to a nursing home. I heard later that Chris had died three years after I encountered him.

Although I was at the hospital only a week, my visit there left a lasting impression and vivid memories. I am glad that Stephen Trimble decided to investigate his brother’s life during this period in our history. And am grateful that he decided to share an excerpt.

The Mike File: A Story of Grief and Hope (an excerpt) 

By Stephen Trimble

You step from your car, distracted, headed for an appointment. A homeless man approaches. Bearded, unkempt, wild-eyed. You know you should be empathetic, but he comes too close. No sense of boundaries, no filters, jumpy in his movements. You pull back, you stiffen, on alert, expecting a request for a handout or a disorganized rant about lurking CIA operatives.

You feel guilty, but you don’t want to get drawn into messiness. You nod, you smile tightly. You look away. You move on.

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(9-10-21) I was delighted to learn this week that Lisa Dailey has been chosen as the Treatment Advocacy Center’s new executive director. I’ve worked with Lisa on criminal justice matters and have been impressed with her knowledge and concern for individuals with severe mental illnesses who are languishing in jails and prisons. TAC initially was founded to push for passage of Assisted Outpatient Treatment laws, but has expanded through the years, fighting the IMD Exclusion and calling for more treatment beds. Unlike the National Alliance on Mental Illness and Mental Health America, it does not accept funding from major pharmaceutical groups.

Here is the organization’s press release.

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(8-30-21) Having supported the National Alliance On Mental Illness for years, I wasn’t surprised when a solicitation letter arrived in my mail box.

But I was when I opened it.

The well-written request asked if I would consider putting NAMI in my Last Will and Testament.

Welcome to turning 70 years old!

When my mother was 93, she looked in the mirror one morning and wondered who that old lady was. I understand her words better now as I enter my seventh decade. I continue to feel as if I can do the sort of physical activities I did when I was in my 30s and competing in marathons and triathlons. Now, instead of going for a five mile run in the mornings, I sit in a hot tub trying to loosen up.

Which brings me to my point. For the past 14 years, I have posted at least one blog, often two, here each week. At last count, 1,382 blogs.

While I have no plans to stop, I am going to allow myself the luxury of posting sporadically in the future.  I find the birth of a third granddaughter and the pending birth of my first grandson calling me away from my computer more often these days.

My passion and advocacy hasn’t diminished, but like my former running days, I’ve decided to slow my pace.

Talk to you soon – but not weekly!

(8-23-21) I’ve been hunkered down this summer – even skipped a beach vacation – because of a fast approaching deadline for my new nonfiction book. But I wish to share a newly released podcast that features my son, Kevin, and me being interviewed about our different perspectives as a parent and adult son with a serious mental illness. Unfortunately, you will need to click on a link below to listen since I have no way of embedding it here.

This is one of a handful of interviews that we have done since release of my book, CRAZY: A Father’s Search Through America’s Mental Health Madness, and, as always, I learn something interesting from Kevin each time we speak in public together. This proved especially true in this podcast because we were interviewed by Gabe Howard, author of Mental Illness Is An Asshole, and one of my favorite advocates with lived experience. He is a popular speaker and veteran at conducting podcasts.  The podcast is available:

• Accessible at NEXUS Website here: https://www.nexusmentalhealth.com/nexus-insights
• Accessible at Buzzsprout and all streaming platforms here: https://www.buzzsprout.com/1324951/episodes/8895199
• Promotion on Facebook page here: https://www.facebook.com/NEXUSMentalHealth

The podcast was done by NEXUS, which stands for Neuroscience Experts Cross-Sector Unconventional Stakeholders. The group is being funded by Otsuka Pharmacy, a major manufacturer of mental health drugs, and is being implemented by Real Chemistry: A Global Health Innovation Company.

We were not paid to be interviewed, nor do either of us ever endorse drugs or pharmaceutical companies. We are always happy, however, to share our stories of resilience and hope.

Members of NEXUS’s steering committee include representatives from the Scattergood Foundation, Depression and Bipolar Support Alliance, NAMI, Active Minds and Mental Health America.

Will Hargreaves at Otsuka explained why it launched NEXUS.

“Through in-depth research, stakeholder interviews, and expert insights, Otsuka established a focus for NEXUS on three key areas of unmet need in mental health where Otsuka’s innovative approach could have the greatest impact: women, youth, and the justice system. While the needs of these groups are different, they share many similarities, such as the need for greater awareness, early intervention, a timely diagnosis, continuity of care, and support throughout life transitions.

One of the goals of NEXUS is to work collaboratively to resolve the mental health challenges facing these groups at critical junctures, such as women becoming primary caregivers, youth moving schools, and individuals transitioning out of pre-incarceration community mental health services into the justice system.

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