Search Results for: that way madness lies

‘The Way Madness Lies’ – Most Honest Portrayal Of How Severe Mental Illness Ravages Families and Lives That I’ve Seen!

duane&sandra

(4-10-17) You are riding in a car on a major highway with a gentle rain splashing on the windshield while you speak into a car microphone to a case worker at Oregon State Hospital, where the movie One Flew Over the Cuckoo’s Nest, was filmed.

You say, “My brother is there and I am wanting to get in touch with his case worker.”

Your call is transferred and a case worker who doesn’t identify himself comes on the line.

You say, “My brother is in the hospital there and I was wondering if I can find out some information about him.”

He says, “Sorry, due to confidentiality laws I can’t tell you whether he is there or not.”

I definitely know he is there because the police just told me that they took him to the hospital. I can at least provide information -“

The case worker cuts you off. “Yeah, I couldn’t do that without telling you whether he is here or not. But you could do that in a letter form. Of course, you can write a letter to anyone. You can write it to the doctor who is in charge of whoever the person is who might be here.”

Thus begins Sandra Luckow’s powerful documentary “That Way Madness Lies...

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Parent Advocate Tells Fed Panel That HIPAA Often Is Used To Stonewall Families

(7-25-18) Mental Health Advocate Doris A. Fuller returned to Washington D.C. recently to testify before the Federal Commission on School Safety at the Departmental of Education about the Health Insurance Portability and Accountability Act of 1996  (HIPAA) and how it often is used to “stonewall” families trying to help a loved one with a serious mental illness. There are three hot button issues, in my opinion, that often are divisive in mental health circles – HIPAA, Assisted Outpatient Treatment, and the Medicaid Institutions for Mental Diseases exclusion.

I am reprinting her testimony to encourage discussion about HIPAA on my Facebook page.

When I first met Doris, she said I was responsible for her moving to Washington D.C. She explained that after she read my book, she felt compelled to find an advocacy job here. Later, I met her daughter – who was the real reason why Doris felt so passionately about our broken system – when Natalie was in a Fairfax County Va. psychiatric ward.

Tragically, Natalie ended her own life. Doris bravely wrote about Natalie’s death for The Washington Post and also for my blog. (Her story remains one of the most read and powerful accounts that I’ve posted. I’ve included a few paragraphs from it and links at the bottom of this post. Please take time to read it.)

Written Testimony by Doris A. Fuller before the Federal Commission on School Safety 

It is a privilege to be here today as a mental health advocate and family member who has observed HIPAA’s role in mental health care delivery in a number of settings, including on a college campus.

A few years ago, I was asked to talk about mental illness and violence to the leading organization for student affairs officers on college and university campuses. Mental illness nearly always emerges by the age of 24 – in late adolescence or young adulthood – so these school officials are working daily on the front lines of mental health. In fact, because of the age that serious psychiatric disease typically starts, it is likely that no single other institutional setting in America serves so many individuals with mental health conditions as our high schools and colleges.

During my talk, I extolled the phenomenal communication, support and encouragement my daughter Natalie and I received from state university officials and health care providers when she had her first psychotic break as a college senior. Her symptoms led to a number of extreme behaviors, including painting her naked body blue from head to foot and pressing body prints all over the walls of the school’s art building. She was not a typical or easy student to serve. Yet, in significant part because of the university and its health center’s active collaboration with me in getting Natalie safely through these episodes, she ultimately returned to campus and graduated.

At the end of my talk to the group I asked if anyone from her university was in the room. Two hands rose timidly in the back.

“Thank you,” I said. “My daughter would not have succeeded without you.”

After I finished, they came up front to talk to me. By this time, I was working at the Treatment Advocacy Center and regularly hearing from families in crisis because of mental illness in their young adult children. I had learned that few students and families experience the open, collaborative approach Natalie and I did.

Why was that? I asked the officers. How could you talk to me and work with me, as a family member, when other schools around the country won’t even return parents’ calls?

They told me it was a matter of institutional policy and practice. The university was guided by the conviction that it had the authority under HIPAA, FERPA and applicable state laws to act in the best interests of its students, even if their actions required disclosing personal health information or other confidential matters to families. It was their belief that acting in the best interest of their students was their business.

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“Let’s Be Straightforward About This” – NAMI Activist Writes Passionately About Need For Families Struggling With SMIs To Be Heard

7-13-18) “Mark is an innovative leader who deserves recognition for his excellent work on the decriminalization of people with serious mental illness.” That’s how the National Alliance on Mental Illness described Mark Gale at NAMI’s 2017 national convention when he was presented with the Sam Cochran Criminal Justice Award. It was created to recognize “outstanding work in the criminal justice system to deal fairly and humanely with people living with mental illness.”

This blog is the final written by participants in a telephone call that was held by a consulting group helping NAMI develop a multi-year strategic plan. I first met Mark while researching my book, CRAZY: A Father’s Search Through America’s Mental Health Madness, when a mutual friend introduced us. We both had sons who’d been arrested because of their mental illnesses. Like the great father that he is, Mark jumped into NAMI with both feet and today he remains  a tour de force in his home state of California. (Read more about him at the end of his open letter to NAMI. 

A Personal Note to NAMI by Mark Gale

Dear NAMI,

Sixteen years ago, when crisis was an almost daily occurrence and we were alone with no one to help guide us, we met very special members of our organization who were brilliant people and passionate about helping our family. We also found support groups to help us heal and Family-to-Family classes to educate us. I have served as a Board member both at the local and state levels and continue my work today as the Criminal Justice Chair of the NAMI Los Angeles County Council. 

NAMI you are my brand and I am dedicated to our work, which is precisely why I feel compelled to share some thoughts with you.

At last year’s Convention, even though I had walked the Hill, advocated strongly, and was nationally honored by NAMI, which was an incredible moment for me, I returned home feeling troubled.

There was a divisiveness amongst us that was apparent and I believe damaging to the organization that I love.

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A Personalized Letter From An Author: The Perfect Holiday Book Gift Is An Email Away

Books by Author Pete Earley

Here’s a chance to receive a personalized letter from an author that can be inserted inside a print edition of the book that you are giving over the holidays or added into a card announcing an ebook purchase.  “To (recipient,) autographed at the request of (Your Name) Best Wishes, Pete Earley” will make one of my books unique as a gift. Purchase a book from your favorite retailer and use the form below on this blog to notify me. Quicker than you can say Ho, Ho Ho, the letter is on its way. But you must fill out the form before December 15th to guarantee delivery and this offer is limited to the first 100 email requests.

Whether you enjoy fiction or non-fiction, there’s a Pete Earley book that will fit on your list. Thank you for your support!

An audio sample of Duplicity, my newest novel.

Sent to inspect a Pakistan prison for human rights violations, NGO Attorney Christopher King encounters a bribe-seeking warden and becomes entrapped in a Taliban attack in this short audio snippet from DUPLICITY, my new action/suspense novel co-authored with former House Speaker Newt Gingrich.

Duplicity

Duplicity by Newt Gingrich and Pete Earley CoverMy newest, DUPLICITY is the first in a two-book series that Speaker Gingrich and I are writing that features two heroic Marines  — Capt. Brooke Grant, a African American military attache, and Sgt. Walks Many Miles, a Crow Indian embassy guard, in a battle against The Falcon, a charismatic terrorist forging an alliance between radical jihadist factions in Africa. It’s been described as a House of Cards and Jason Bourne thriller.

Resilience

Resilience Book CoverIf you prefer non-fiction, consider RESILIENCE: TWO SISTERS AND A STORY OF MENTAL ILLNESS, the autobiography that I helped Jessie Close write about her recovery from mental illness and addictions. Jessie speaks frankly about her bipolar disorder, suicide attempts, failed marriages and the resilience that eventually led to her healing and recovery in this lively, witty and poignant book that includes vignettes by her famous actress sister, Glenn Close.

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With Time Running Out, The Fight Escalates: Helping Families in Mental Health Crisis Act

Pennsylvania Republican Tim Murphy  urged his fellow House members on Thursday morning to support and pass H.R. 3717, the Helping Families in Mental Health Crisis Act, before August 1st, when Congress goes on recess.  Although more than one-third of House members have agreed to co-sponsor the bill, it remains stuck in the House Energy and Commerce Committee. That committee’s chairman, Rep. Fred Upton (R-Mich.) reportedly has said he will not release the bill to the House floor for a vote unless a consensus is reached between Murphy and Democrats who introduced their own bill to stop Murphy’s.

In his five minute speech, Murphy said that fifty percent of persons with schizophrenia suffer from a neurological impairment that makes them incapable of understanding they are ill.

We deny people the right to treatment. We deny them the right to get better. How cruel is that?…The federal government sits oblivious to the problem, and in some cases, actually creates barriers to treatment for those who need help the most…We tell families that federal laws prohibit you from knowing why your loved one is in a mental health crisis, and doctors tell the family your son is only a little dangerous right now, but please bring them back when they become truly violent and then they can be treated. How absurd. Can you imagine if we told someone with diabetes, your blood sugar is too low but we are going to wait until you are in diabetic shock before we give you insulin? The doctor would be fired, the hospital would be sued, and we would ensure that it never happens again. Yet, for families in a mental health crisis, this scenario plays out every single day and not a word is spoken about it.

Murphy delivered his speech a few days after opponents of H.R. 3717, issued an ACTION ALERT urging persons diagnosed with mental disorders to lobby against Murphy’s bill. The National Coalition for Mental Health Recovery described Murphy’s legislation as “shockingly regressive” and warned that its passage would “reverse some of the most significant advances of the last 30 years in mental health services and supports.”  The group said it was urging its supporters to contact their representatives between July 21 to August 1.

If any of your Representatives are co-sponsoring, you should respectfully request that they remove their co-sponsorship.

I’ve written before about the hearings that Murphy’s subcommittee held before he drafted his bill. I testified at one public forum in favor of adopting a “need for treatment standard” rather than using “dangerousness” as a criteria for involuntary commitment.

While my call for a more realistic standard puts me at odds with the bills’ opponents,  it is only one — and arguably not the main issue — they oppose.

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Stealing Money From Individuals With Mental Illnesses: 4 Shameful Stories

(8-5-19  It’s August, which means I will be taking a short, but much needed vacation with my family, and also finishing my new novel, entitled SHAKEDOWN. Please enjoy this blog, one from the 1,250 that I’ve posted since 2006. 

You might remember Ted Jackson if you read CRAZY: A Father’s Search Through America’s Mental Health Madness. Ted was convinced Jesus was returning to earth in 2007.

Ted said God had commanded him to warn people about judgment day by spray painting “Jesus 2007” graffiti everywhere he could. He was arrested several times but he refused to stop.

Why should he? God had told him that he was a modern day John the Baptist.

One night a South Beach Miami police officer broke Ted’s right arm to stop him from spraying graffiti.

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